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  • Arthritis Affects Kids Too: Unite about Juvenile Arthritis

    http://kellyrouba.blogspot.com

    To help spread the word about Juvenile Arthritis, an often "invisible illness" that affects more than 300,000 kids.

    Greetings Bloggers and Happy May Day! It's May 1st and today is the day that the Bloggers Unite for Juvenile Arthritis begins! Between now and May 15th, I'm have asked bloggers to help spread awareness about Juvenile Arthritis and Kelly Rouba's book: Juvenile Arthritis: The Ultimate Teen Guide. I'd like to thank the following bloggers for joining the campaign either through me or the website, BloggersUnite.org: Emily Lapkin: Organized Wisdom (@organizedwisdom) Suzana Uzelac: The Firefly Shop (@FireflyShop) Joe Palazzolo: JerseySmarts.com Roger Carr: Everyday Giving Blog Iris Garza: http://irisgarza.net The 2009 National Juvenile Arthritis Conference Blog Catalog: http://www.blogcatalog.com Dianne Doctor: NJMyWay.com I have included all of the details of the campaign below for your review. Please email me and let me know if you would like to participate. And definitely pas this along to anyone you know who has a blog! ARTHRITIS AFFECTS KIDS TOO: MAY IS ARTHRITIS AWARENESS MONTH In December over 100 NJ bloggers joined Deb Smith with Jersey Bites to help save the NJ Food Banks. Now it's time to unite again for an important cause and an even more inspiring and motivational woman: NJ native Kelly Rouba and her debut book, Juvenile Arthritis: The Ultimate Teen Guide. May is Arthritis Awareness Month and with our power to educate and inspire, we can spread the word about Kelly and her book. There are over 300,000 children affected with JA in the US and some of them you would never know are suffering. For some, the pain is private, with symptoms lasting for years before they receive the official diagnosis. And some kids have to drive hours to see their pediatric rheumatologist since there are such limited numbers across the country. Kelly herself was diagnosed at 2 years old while other kids featured in her book were in their teens. Kelly really wanted to make her book one that kids would want to read. She wanted to give them an up-to-date resource guide that put familiar faces with the disease. Featured with Kelly are Allyson Shapiro, a reality tv star, Amanda White, a champion figure skater, and Shaun-Marie Robbins, a new mother who is having difficulty doing everyday mommy tasks. On May 3rd and May 17, the NJ Chapter of the Arthritis Association is holding their annual Arthritis Walk across New Jersey. Kelly is the pr chair for the Princeton event and will be on hand to meet walkers and supports. Please run this post anytime between May 1 and 15th, giving people time to sign up last minute for the various walks if interested. By that time, I will hopefully have some additional book signing dates and media appearances for Kelly (i.e. we have her slate to appear on News12NJ in July since that is Juvenile Arthritis Awareness Month). I have attached various links and facts below to use in your posts. The first link is to my business site (which is still under construction) where you'll find 3 press releases that are free to use. There is also a video included from a new documentary being made about JA. There is also a campaign badge attached that should be linked to the Amazon site. Please EMAIL me with your name, site name and URL to register for the campaign an then follow-up when your post is live! Let me know if you'd like to include quotes/excerpt from the book. * Press Releases: http://hmorris-solutions.com * Kelly is featured in a documentary called Waking up by Marc Steiner which takes an intimate look at people with JA. The video is free to use on your post: http://www.facebook.com/home.php#/video/video.php?v=1023065220632 * Amazon link: http://www.amazon.com/Juvenile-Arthritis-Kelly-Rouba/dp/0810860554 * NJ Chapter Walk: http://www.arthritis.org/chapters/new-jersey/arthritis-walk.php * How the Nintendo Wii helped Kelly play sports for the first time! * Jennie Garth, from 90210 fame, spoke about her daughters diagnosis: http://celebrity-babies.com/2008/09/06/jennie-garth-op/ * Allyson Shapiro, daughter of Jill Zarin-Real Housewives of New York City, was diagnosed at 10 years old * Kelly was named Creaky Joints Superstar: Volunteer of the Year in 2008: http://www.creakyjoints.org/community/members/cj-superstar/kelly-rouba-volunteer-of-the-year-and-cj-superstar * Shaun-Marie Robbins, Hamilton resident, was diagnosed at 18months and recently had a baby. For the health of her unborn baby, Shaun-Marie went off her medication. * Update: Make sure to check out Kelly's blog for book info, her bio and updates on appearances and press like the recent feature at JointsLikeMine.com (@jointslikemine) You can also follow Kelly on Twitter at @KellyRouba: Those of you who would like a chance to meet Kelly and other people featured in her book, you can come to the Arthritis Walk on Sunday May 3rd at the Princeton Forrestal Village. Contact: Hilary Morris 609-462-3228 hmorris@hmorris-solutions.com