Fibromyalgia Awareness Day Comments
Blogspot Maintenance!
Blogger chose the worst day ever to schedule maintenance! Yup, YESTERDAY! In the process of updating or whatever it is the techies were doing, Blogger ate my post and I assume many others' as well! Finally, after 24 hours, its up and running again and I was able to respost my entry! If Blogger ate yours too, please upload it again!
((gentle hugs)) to my fellow Fibro Friends.
meandmyfibro.blogspot.com
Suffering with Fibromyalgia
I spread the word about today and my daughter did as well. All of her friends on Gaia placed their avatars in purple in honor of Fibromyalgia Awareness Day! Today was a normal pain filled day, but knowing that I am not alone and that people like myself are trying to help one another makes me feel like it is worth the fight. I planned on sending the link to my local representatives for my State in hopes that they will recognize this illness and fund more research for the cause and for a way to help with the pain without the use of heavy narcotic medications, anti-inflammatory medications, and muscle relaxers. I hope that everyone who is suffering with Fibromyalgia had a good day today and will have much better days in the future! Rock the Purple and may we ALL feel better soon!
My Name is Fibromyalgia...by Terri Been
Hi....My Name is Fibromyalgia, and I'm an invisible chronic illness. I am now velcroed to you for life. Others around you can't see me or hear me,
but YOUR body feels me. I can attack you anywhere and anyhow I please. I can cause severe pain or, if I'm in a good mood, I can just cause you to ache all over.
Remember when you and Energy ran around together and had fun? I took Energy from you, and gave you Exhaustion. Try to have fun now! I
also took Good Sleep from you and, in its place, gave you Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh, yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away, too. You didn't ask for me. I chose you for various reasons: That virus you had that you never recovered from, or that car accident, or maybe it was the years of abuse and trauma. Well, anyway, I'm here to stay!
I hear you're going to see a doctor who can get rid of me. I'm rolling on the floor, laughing. Just try. You will have to go to many, many doctors
until you find one who can help you effectively. You will be put on pain pills, sleeping pills, energy pills, told you are suffering from anxiety or depression, given a TENS unit, get massages, told if you just slept and exercised properly I will go away, told to think positively, poked, prodded, and MOST OF ALL, not taken as seriously as you feel when you cry to the doctor how debilitating life is every day.
Your family, friends and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that I'm a debilitating disease. Some of them will say things like "Oh, you are just having a bad day" or "Well, remember, you can't do the things you use to do 20 YEARS ago", not hearing that you said 20 DAYS ago. Some will just start talking behind your back, while you slowly feel that you are losing your dignity trying to make them understand, especially when you are in the middle of a conversation with a "Normal" person, and can't remember what you were going to say next!
In closing, (I was hoping that I kept this part a secret), but I guess you already found out...the ONLY place you will get any support and understanding in dealing with me is with other people with Fibromyalgia.
by: Terri Been
www.fms-help.com/mnif.htm
Happy Fibro Day!
Wishing all my fellow fibro friends a pain free day , and here's hoping that we have many more pain free days ahead of us. Keep smiling, laughter really is the best medecine! Take Care All!
find a cure
happy fibro day everyone
hope its a pain free day i was diag 2 years ago
it has been a long road .. nerve damage, headaches. pain all over. now starting arth in my feet ,,
my wish is they will find a cure and the dr wake up a relailize tthis is real and not all in our heads ...
My blog about Fibromyalgia
pathsfrommysoul.blogspot.com/2011/05/national-fibromyalgia-awareness-day.ht...
Long Over Due Event!
This event could mark a turning point in the way that skeptics, friends, family, doctors, employers, etc. look at Fibromyalgia! We can use all the support we can get. I will gladly wear purple tomorrow and come back here to post a comment to share.
Thank you!! ~ctravlngrl
awareness is crucial
We need to make folks aware of what fibromyalgia is, the need to educate health care professionals about the condition, to get positive media coverage, to get research funding. On May 12, 2011 I will be blogging for Fibromyalgia Awareness Day.
Fibro what? Myalgia Yes it is real.
Remember the last time you have a really bad flu/virus ? Your muscles hurt
You may have felt really tired. FMS is like that . Day after day.
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Fibromyalgia Awareness Day
National Fibromyalgia Awareness Day aims to increase awareness of FM and provide support to those coping with the illness.
May 12 is National Fibromyalgia Awareness Day, a time to increase awareness of this chronic and life-altering disorder by educating the general public, healthcare professionals, government officials, and legislative bodies. About Fibromyalgia: Fibromyalgia syndrome affects the muscles and soft tissue. Fibromyalgia symptoms include chronic pain in the muscles, fatigue, sleep problems, and painful tender points or trigger points at certain parts of the body. Fibromyalgia pain and other symptoms can be sometimes be relieved or eased through medications, lifestyle changes, stress management, and other fibromyalgia treatment.
Moderator?
5/17/11
by: feliciafibro
Is anybody moderating this event anymore? I submitted my Awareness Day post on 5/12/11 and it hasn't been added. I noticed that no other posts have been added either.
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