Bloggers Unite: Fibromyalgia Awareness Day

Moderator?

Tue, 17 May 2011 17:54:05 -0500

Is anybody moderating this event anymore? I submitted my Awareness Day post on 5/12/11 and it hasn't been added. I noticed that no other posts have been added either.

Blogspot Maintenance!

Fri, 13 May 2011 12:53:59 -0500

Blogger chose the worst day ever to schedule maintenance! Yup, YESTERDAY! In the process of updating or whatever it is the techies were doing, Blogger ate my post and I assume many others' as well! Finally, after 24 hours, its up and running again and I was able to respost my entry! If Blogger ate yours too, please upload it again! ((gentle hugs)) to my fellow Fibro Friends. http://meandmyfibro.blogspot.com

Suffering with Fibromyalgia

Thu, 12 May 2011 18:19:35 -0500

I spread the word about today and my daughter did as well. All of her friends on Gaia placed their avatars in purple in honor of Fibromyalgia Awareness Day! Today was a normal pain filled day, but knowing that I am not alone and that people like myself are trying to help one another makes me feel like it is worth the fight. I planned on sending the link to my local representatives for my State in hopes that they will recognize this illness and fund more research for the cause and for a way to help with the pain without the use of heavy narcotic medications, anti-inflammatory medications, and muscle relaxers. I hope that everyone who is suffering with Fibromyalgia had a good day today and will have much better days in the future! Rock the Purple and may we ALL feel better soon!

My Name is Fibromyalgia...by Terri Been

Thu, 12 May 2011 14:50:24 -0500

Hi....My Name is Fibromyalgia, and I'm an invisible chronic illness. I am now velcroed to you for life. Others around you can't see me or hear me, but YOUR body feels me. I can attack you anywhere and anyhow I please. I can cause severe pain or, if I'm in a good mood, I can just cause you to ache all over. Remember when you and Energy ran around together and had fun? I took Energy from you, and gave you Exhaustion. Try to have fun now! I also took Good Sleep from you and, in its place, gave you Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh, yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away, too. You didn't ask for me. I chose you for various reasons: That virus you had that you never recovered from, or that car accident, or maybe it was the years of abuse and trauma. Well, anyway, I'm here to stay! I hear you're going to see a doctor who can get rid of me. I'm rolling on the floor, laughing. Just try. You will have to go to many, many doctors until you find one who can help you effectively. You will be put on pain pills, sleeping pills, energy pills, told you are suffering from anxiety or depression, given a TENS unit, get massages, told if you just slept and exercised properly I will go away, told to think positively, poked, prodded, and MOST OF ALL, not taken as seriously as you feel when you cry to the doctor how debilitating life is every day. Your family, friends and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that I'm a debilitating disease. Some of them will say things like "Oh, you are just having a bad day" or "Well, remember, you can't do the things you use to do 20 YEARS ago", not hearing that you said 20 DAYS ago. Some will just start talking behind your back, while you slowly feel that you are losing your dignity trying to make them understand, especially when you are in the middle of a conversation with a "Normal" person, and can't remember what you were going to say next! In closing, (I was hoping that I kept this part a secret), but I guess you already found out...the ONLY place you will get any support and understanding in dealing with me is with other people with Fibromyalgia. by: Terri Been http://www.fms-help.com/mnif.htm

Happy Fibro Day!

Thu, 12 May 2011 12:36:27 -0500

Wishing all my fellow fibro friends a pain free day , and here's hoping that we have many more pain free days ahead of us. Keep smiling, laughter really is the best medecine! Take Care All!

find a cure

Thu, 12 May 2011 09:33:25 -0500

happy fibro day everyone hope its a pain free day i was diag 2 years ago it has been a long road .. nerve damage, headaches. pain all over. now starting arth in my feet ,, my wish is they will find a cure and the dr wake up a relailize tthis is real and not all in our heads ...

My blog about Fibromyalgia

Wed, 11 May 2011 22:12:06 -0500

http://pathsfrommysoul.blogspot.com/2011/05/national-fibromyalgia-awareness-day.html

Long Over Due Event!

Wed, 11 May 2011 17:49:28 -0500

This event could mark a turning point in the way that skeptics, friends, family, doctors, employers, etc. look at Fibromyalgia! We can use all the support we can get. I will gladly wear purple tomorrow and come back here to post a comment to share. Thank you!! ~ctravlngrl

awareness is crucial

Wed, 04 May 2011 00:31:43 -0500

We need to make folks aware of what fibromyalgia is, the need to educate health care professionals about the condition, to get positive media coverage, to get research funding. On May 12, 2011 I will be blogging for Fibromyalgia Awareness Day.

Fibro what? Myalgia Yes it is real.

Mon, 25 Apr 2011 20:05:28 -0500

Remember the last time you have a really bad flu/virus ? Your muscles hurt You may have felt really tired. FMS is like that . Day after day.

Fibromyalgia

Tue, 19 Apr 2011 20:39:08 -0500

Hello, everyone! I am new to this site and just joined two days ago. Happy to meet other Fibro Warriors out there, share stories and support one another. Wishing you all a less painful day....

Living with it daily

Thu, 14 Apr 2011 02:35:37 -0500

There are so many great things happening to bring awareness FINALLY! We still have a long way to go. Thank you to the many trail blazers who fought to get us where we are today.Thank you for Rest Ministries and Lisa Copen, thank you for Sharon Ostalecki in Novi, MI with Helping Our Pain & Exhaustion.

New to this

Tue, 29 Mar 2011 22:04:20 -0500

Very new to this, happy to find others who are dealing with what I deal with each day.

Diagnoses Change with the Weather: If you don't like it, wait 5 minutes.

Sat, 12 Dec 2009 09:05:09 -0600

In spite of being attacked, my head fractured from the repeated slamming on the side walk, and my neck herniated, end stage OA which requires both knees to replace (be careful lifting weights!) I've seen a new pain specialist, and after adding spinal arthritis, etc., I have Fibromyalgia, the so called "fake disease." I also have signs of MS, and NOW they are taking Fibro seriously. Recently released report on neurological symptoms. The study was so small, and in the end, not helpful at all. So I'm a wreck and my computer is 3 ft. from my bed. Waiting for med doses to go up. Believe me, next time, I'll have a lot to contribute, either way. If you are still mobile, keep doin' it. Attitude is half the battle, and if you have a doctor that won't help, or treats you like a dog, find another one! Do not give up! HR756. The Pain Relief Act. will pass. Voice vote in the House, and 100 votes in the Senate. The goal is to write and carry out a study as to the best way to educate doctors, so that they don't fear law enforcement agencies taking their licenses.

Thanks to all who participated in National Fibromyalgia Awareness Day!

Wed, 13 May 2009 08:57:28 -0500

To everyone who wrote a post in honor of Fibromyalgia Awareness Day, thank you! Your support means so much to those coping with this illness. Raising awareness and dispelling the myths surrounding FM are critical to our healing, and the more people we can get to join in the effort the better! Thank you again.

Today is Fibromyalgia Awareness Day!

Tue, 12 May 2009 11:38:13 -0500

May 12 is National Fibromyalgia Awareness Day. If you or anyone you know is dealing with this illness, please consider participating in the Bloggers Unite event. Your support will mean more than you know. To those of you who have already pledged your participation and support, thank you! I know many of us are eager to read your posts.

Fibro and Lupus often go hand-in-hand

Mon, 04 May 2009 16:04:33 -0500

Although we focus primarily on lupus at My Life Works Today!, we are also committed to supporting other awareness efforts that affect so many, such as Fibromyalgia. We are honored to do what we can to join in on this important day -

My Awareness

Tue, 14 Apr 2009 22:48:48 -0500

Hi, I'm really sorry to read about much of your suffering. My girlfriend's Mum has recently been diagnosed with Fibromyalgia, after suffering for 30 years - but really, that's not helped her find a cure! My mother is a Homeopath and is currently trying to help Anne through a course of remedies specific to her as an individual. It's too early to say if this will work but I thought I'd mention it. I'm supporting your cause on my site and felt that this might be of interest to you. I've created a 'friends of friends' accommodation network (http://MyFriendsHotel.com) and, hypothetically, a Fibromyalgia group could be created so that you could find accommodation (for holidays, weekend breaks) with other like minded people or sufferers for a break or for mutual support. Just letting you know. Best wishes, Pete

Thank you for the initiative

Mon, 23 Mar 2009 20:55:43 -0500

Hello, I knew little about it until I met timethief who suffers from it! She is my friend from Canada and an active blogger despite the pain.

Write a Letter to the Editor

Mon, 16 Mar 2009 18:02:04 -0500

I have been planning on doing this for years and just haven't gotten it done. Still, I would encourage everyone who is interested in promoting fibromyalgia awareness to write to the editors of your newspapers and ask that they include an article on Fibromyalgia Awareness Day for May 12.

We must go through a mourning process before we can accept it

Thu, 05 Mar 2009 18:32:36 -0600

1993 finally after tests and doctors not believing me, it happened. An actual diagnosis. It is real, It does hurt, The weather affects it, Stress affects it, I am strong and I can get through. I mourned the loss of my old self about 12 years ago. It was more bearable then. I set aside 1 day a week to wallow; Meaning, if I want to nap, I do, if I want to stay in my jammies, I do and no one can say or do or ask anything of me. My husband and two beautiful daughters are amazing and I am so Blessed to have them. They mourned with me, and walk with me through each day of the pain.

The pain is crippling, isolating, & REAL! ....

Mon, 02 Mar 2009 13:57:07 -0600

After suffering for 15 years with the most devastatingly pain 24/7, always having to push myself thou the day being in a state of giving up and wanting to die, doctor after doctor, diagnosis after diagnosis and never getting free from what I was going thru, losing my concession business of 23 years, not being able to do thing other mom's did with their kids and grand kids and just really wondering if I'd ever be able to be normal again in this life, I really had just begin to accept pain would be apart of my day and night for the rest of my life. I tried to create a new life around this diagnoses which I got three years ago, 12 years after it started and many prescriptions of pain pills, psych med cause you know in the beginning they all told me it was in my head and I had to be crazy, muscle relaxers the list is so long I can't remember them all I just filled them and prayed it worked. Due to me not being able to hold a job for more than 4-5 hours a day from being to tired, and a daughter still at home to care for who was reaching her teens and you know teens have lots of wants weather you can buy them or not, I started to work from home on the computer as a network marketer. Fibromyalgia has taken me from the life I knew, but my new life allows me to slow down and smell the roses, I don't like the fact I have Fibromyalgia but I am grateful for the people I have come to know and can help, the personal growth things I have learned, a love for my self and others that makes me know all things are possible with god. I’m not 100% better but I’m getting my life back. I now have a hope of getting a social life again. I work from home as a network marketer, and am co-creator of a healthy coffee biz, and soon to start a on-line radio show. to your health & feeling better................. Deborah

Fibromyalgia is real, but doesn't have to hold you back

Sat, 28 Feb 2009 16:07:33 -0600

I was diagnosed with fibromyalgia 10 years ago while a junior in college. The experience of hurting and feeling so alone is one I'll never forget, but I also recognize that it shaped who I am today. I have fibromyalgia, but try to not let it hold me back from living my life to the fullest. Today, I am a working professional with a graduate degree and hopes of continuing on to earn my doctorate. I am happily married to a wonderful, kind man and together we love to travel the world and enjoy quiet moments, like browsing books over a cup of coffee. Obviously, some days are better than others, but getting through the hard ones is easier now that I have a support group around me. This is why I added Fibromyalgia Awareness Day to Bloggers Unite. I hope that through this, others suffering with this disorder will find that they are not alone, and that there are people out there who recognize their daily struggle, but love and support them nevertheless. Fibromyalgia is real, but it doesn't need to define who you are. I look forward to reading your posts on May 12 and sharing them with others. Thank you.