welcomed comfort
I am a suffer of chronic pain. I have Interstitial Cystitis, Fibro, Irritable Bowel, TMJ, and suffer from depression and chronic fatigue syndrome. It is thrilling to feel support from the community....my grown children do not understand.I can understand, but, it really hurts when they cut me short when I mention treatments, or cycles of pain. I have had to stop working as a hairstylist 6yrs. ago. I have been in a mental hospital on two different times for bi-polar symptoms that are misunderstood and have a stigma. It is even hard to get my MD. to really get the pain, probably because I am basically optimistic, and no that is not a contradiction of terms. I hope this Blog is of help to some other person that suffers..it just helps to know one other person knows and cares about them.I am a Christian and I have great faith that God loves me and care for me. I hope my faith will encourage you!
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National Invisible Chronic Illness Awareness Week
http://www.invisibleillnesswee…
To increase awareness of invisible illness; that nearly 1 in 2 people in the US have a chronic illness and about 96% of it is invisible.
National Invisible Chronic Illness Awareness Week is held annually in September and is a worldwide effort to bring together people who live with invisible chronic illness and those who love them. A virtual conference in held at www.invisibleillnessweek.com and the blog is updated a few times a day during August and September. Bloggers are welcome to participate anytime, but are encouraged to unite efforts during August and September to increase awareness online and share their experiences as well as encouragement. A badge is available that says you are blogging during the actual awareness week. Organizations are encouraged to educate the general public, churches, healthcare professionals and government officials about the impact of living with a chronic illness that is not visually apparent. INSTRUCTIONS: Get the Badge 1. Right click on the badge to download 2. Link it back to this web site at this link: http://invisibleillnessweek.com 3. Then write your blog posting. 4. Come back to this web site OR invisibleillnessweek.com and let us know about your blog in the comments section. Tell us about it! Share your title, topic/description and link. When to blog 1. You can blog at any time as we want people to know about this week during any time of the year. However, here are some tips. 2. Please post a blog on SEPTEMBER 14, 2009. We hope to have hundreds of blogs participate on this day! 3. Each day September 1 through Sept 20th we will be choosing a blog to feature on the Invisible Illness Week Blog. You will get loads of exposure, and we hope to also inform, educate, and encourage others. A few ideas to write about * Remember that not all of your posts have to have the "it's so not fair" tone. Write your "best advice" to others who feel invalidated. How have you learned to get past the remarks people have made? * Don't forget families and what they also cope with when one of their members has an illness. And how is it being invisible easier/more difficult for them? For example, if Dad's illness is invisible, does your son have to cope with his friends wondering why his Dad never participates in the father/son baseball game? * Remember caregivers. Any thanks, thoughts? * Remember all the aspects of living with invisible illness. Being a parent, a spouse, an adult child (who is maybe a caregiver too), a neighbor, etc. * Don't forget about all the kids who have illness too! * Cancer can be considered an invisible illness, as are things like eating disorders, mental illness and the list goes on. * Got others? Share them! IMPORTANT: We hope to blow those Google Alerts apart on Sept 14th with blogs all over the internet posting about invisible illness issues. Remember that with most blogging programs you can even write it in advance and have your post published on September 8th. Can you commit for us to blogging on September 14th on a topic about illness or invisible illness? We want to keep track, so please let us know by signing up here at Bloggers Unite.
9/17/09 TriciaFM wrote:
I would love to read your blog but I can't find it. Could you leave a link or the title to your blog please.
9/18/09 ladayno213 wrote:
I can really relate to what you have posted. I would also love to read your blog. My mother always cuts me short as welll. When I start to tell her something that may have happened at an appointment she puts her hand up and "no, no, stop, I don't want to hear it." It is so frustrating. My sisters are the same way. I can also understand the stigma of mental illness. I have depression, anxiety, panic disorder and PTSD and I have also been in the mental health ward. We have so much in common from what I can see. Please send a link to your blog. Thanks.
Soft Hugs and Prayers to you.
Laurie D