National Invisible Chronic Illness Awareness Week Participating Blogs

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Invisible Illness Awareness Week
http://wheredidigetthislemon.blogspot.com/2009/09/invisible-illness-aw…
Links to my past posts on invisible illness including "You Look Good, You Must Be Better, Right?", "What NOT To Say", and "The Push-Crash Cycle".
Invisble Awareness Week, Post 2: Things I Like...about My Chronic Illness
http://rochelle-learning-to-trust.blogspot.com/2009/09/invisble-awaren…
My usual "Things I Like Tuesday" post is changed to "Things I Like...about My Chronic Illness"
Transitioning Between the Worlds of the Healthy and the Chronically Ill
http://myuiiblog.blogspot.com
A flashback post to the end of my internship 2 years ago, when after 8 weeks of living "normally" I returned to my chronically ill world. Other post about having hope and good people.
30 Things About My Invisible Illness You May Not Know Today, But Will Remember Tomorrow
http://ohmyachesandpains.blogspot.com/2009/08/30-things-about-my-invis…
My favorite motto, scripture, quote that gets me through tough times is: from Randy Pausch: "But remember, the brick walls are there for a reason. The brick walls are not there to keep us out. The brick walls are there to give us a chance to show h
If Your Friend is Ill --- 28 Tips From Invisible Illness Week
http://ohmyachesandpains.blogspot.com/2009/09/if-your-friend-is-ill-27…
There is a wealth of information at the Invisible Illness Week website. One gem I have found there is this list of ideas for what you can do to support your friend(s) who live with chronic illness. Originally a list of tips to share on Twitter, I LOVE thi
What You See, How I Feel: Life with Invisible Illness
http://ohmyachesandpains.blogspot.com/2009/09/what-you-see-how-i-feel-…
I think the hardest part of having an invisible illness is not looking sick. How I look leads many people to think that maybe I am not sick after all or perhaps I am getting better. I wish that either one of those two things were true. Sadly, they are not
What Not to Say & What to Say to a Chronically Ill Person
http://ohmyachesandpains.blogspot.com/2009/09/what-not-to-say-what-to-…
These lists are compliments of National Invisible Chronic Illness Awareness Week at www.invisbleillness.com. Get involved in Invisible Illness Week this year during the week of September 14-20, 2009, including the 5-day virtual conference online.
The Amazing Internet: What Works for Those With Invisible Illness
http://ohmyachesandpains.blogspot.com/2009/09/amazing-internet-what-wo…
I can't wait for the beginning of the Invisible Illness Week 5 Day Virtual Conference. Anticipating it today, I thought about how integral the Internet is to my ability to reach out to other people living with chronic illnesses. From a self-help weekly gr
My Life with Invisible Illness: Taking a Closer Look
http://ohmyachesandpains.blogspot.com/2009/09/my-life-with-invisible-i…
I live with (or have lived with, in the case of my cancer) six different invisible illnesses: acute promyelocytic leukemia, hepatitis C, Type 2 diabetes, dysautonomia, fibromyalgia and chronic fatigue syndrome. Sure, when you look at me, you really can't
30 things you may not know about my Invisible Illness...
http://blwsquared.blogspot.com/2009/09/30-things-you-may-not-know-abou…
This blog is about how I am planning a wedding while living with RSD/CRPS. This post is about my 30 things, but many of the other posts have emotions and events that relate directly to my RSD/CRPS. Please feel free to read and comment!
When life gives you lemons..
http://seraphiel-444.livejournal.com/72250.html
Finding the positives of having a chronic illness
Invisible Illness...We Wish! Hirsutism Can't Be Hidden Enough
http://www.excess-facial-hair-relief.com/invisible-illness.html
Over 40 million women in the US have excess, unwanted facial hair but it's still taboo, even among best friends and lovers, and especially among women with full beards.
Things you need to know....
http://sunflowerschocolateandlittleboys.blogspot.com/2009/09/things-yo…
My post to support the Invisible Illness Week
Transitioning Between the Worlds of the Healthy and the Chronically Ill
http://myuiiblog.blogspot.com/
A reflective post from 2 years ago, about how after a few weeks of living 'normal', I struggled to return to my 'ill' world.
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National Invisible Chronic Illness Awareness Week
http://www.invisibleillnesswee…
To increase awareness of invisible illness; that nearly 1 in 2 people in the US have a chronic illness and about 96% of it is invisible.
National Invisible Chronic Illness Awareness Week is held annually in September and is a worldwide effort to bring together people who live with invisible chronic illness and those who love them. A virtual conference in held at www.invisibleillnessweek.com and the blog is updated a few times a day during August and September. Bloggers are welcome to participate anytime, but are encouraged to unite efforts during August and September to increase awareness online and share their experiences as well as encouragement. A badge is available that says you are blogging during the actual awareness week. Organizations are encouraged to educate the general public, churches, healthcare professionals and government officials about the impact of living with a chronic illness that is not visually apparent. INSTRUCTIONS: Get the Badge 1. Right click on the badge to download 2. Link it back to this web site at this link: http://invisibleillnessweek.com 3. Then write your blog posting. 4. Come back to this web site OR invisibleillnessweek.com and let us know about your blog in the comments section. Tell us about it! Share your title, topic/description and link. When to blog 1. You can blog at any time as we want people to know about this week during any time of the year. However, here are some tips. 2. Please post a blog on SEPTEMBER 14, 2009. We hope to have hundreds of blogs participate on this day! 3. Each day September 1 through Sept 20th we will be choosing a blog to feature on the Invisible Illness Week Blog. You will get loads of exposure, and we hope to also inform, educate, and encourage others. A few ideas to write about * Remember that not all of your posts have to have the "it's so not fair" tone. Write your "best advice" to others who feel invalidated. How have you learned to get past the remarks people have made? * Don't forget families and what they also cope with when one of their members has an illness. And how is it being invisible easier/more difficult for them? For example, if Dad's illness is invisible, does your son have to cope with his friends wondering why his Dad never participates in the father/son baseball game? * Remember caregivers. Any thanks, thoughts? * Remember all the aspects of living with invisible illness. Being a parent, a spouse, an adult child (who is maybe a caregiver too), a neighbor, etc. * Don't forget about all the kids who have illness too! * Cancer can be considered an invisible illness, as are things like eating disorders, mental illness and the list goes on. * Got others? Share them! IMPORTANT: We hope to blow those Google Alerts apart on Sept 14th with blogs all over the internet posting about invisible illness issues. Remember that with most blogging programs you can even write it in advance and have your post published on September 8th. Can you commit for us to blogging on September 14th on a topic about illness or invisible illness? We want to keep track, so please let us know by signing up here at Bloggers Unite.




