National Invisible Chronic Illness Awareness Week Participating Blogs
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Invisible Illnesses, Part I: My Definition
http://nerdse.wordpress.com/2009/08/27/invisible-illnesses-part-i-my-d…
Defines invisible illnesses with some humor thrown in, some at the expense of those chronic illness sufferers who give the rest of us a bad name. Speaks about sickle cell anemia once being considered "not real," and the hope that invisible illnesses which
My Story as a Nurse and Patient, in the Face of Healthcare Reform
http://angiltarachrn.blogspot.com/
I am a registered nurse and a patient with Sjogren's Syndrome & Chronic Fatigue Immune Deficiency Syndrome. This is the story of my battle to be diagnosed, and treated.
The Importance of a Good Support System
http://ramblingsofinsanemind.blogspot.com/2009/08/importance-of-good-s…
If you live with fibromyalgia, neuropathy, CFS, MPS, or another "invisible pain illness" there is no doubt you may come across naysayers, negative Nancy's, friends and family who in the least don't understand what you are going through, in the worst... do
"Spoonie"
http://ruminarispoonie.wordpress.com/2009/08/16/spoonie/
This post discusses my connection to "The Spoon Theory," a metaphor for explaining to friends and family what it's like to live with an invisible chronic illness to someone.
Venting
http://novelpatient.com/2009/08/13/venting/
Novel Patients shares the difficulties and struggles of living with a chronic illness in her 20s.
What is Helpful to Say to Someone with Chronic illness/Pain
http://thekingsshepherds.blogspot.com/2009/08/what-is-helpful-to-say-t…
When we talk with someone who has chronic illness/pain we often respond out of our own anxiety-we are not okay with the messiness of life. It makes us uncomfortable. This post delves into that reality and shares some ideas on what could be helpful to say
Invisible Illness/Pain
http://thekingsshepherds.blogspot.com/2009/06/invisible-illness-or-pai…
What it is like to be someone who hurts all the time, and yet looks "normal" to everyone on the outside.
Interacting with people who have chronic pain/illness- part 4
http://thekingsshepherds.blogspot.com/2009/08/interacting-with-people-…
The wounding effects our words can have on those with invisible illness/pain.
Planning with Pain
http://thekingsshepherds.blogspot.com/2009/07/interacting-with-people-…
This post is about the reality of not knowing how you will feel tomorrow or even moment by moment, and what that means for one's life.
The Chronic Illness Wrangler
http://draletta.typepad.com/explorewhatsnext/2009/06/the-chronic-illne…
All at once I was the cowgirl wrangler ready to outrace any stupid galloping illness. It wasn't much but it was what I had.
SEZARY SYNDROME
http://darryltanod.blogspot.com/2009/02/sezary-syndrome_20.html
This Sezary cell is the malignant pleomorphic T cell seen in mycosis fungoides and has a convoluted nucleus. In the peripheral smear, these cells number greater than 1.0x10*9/l. Prior to sophisticated molecular techniques such as flow cytometry, a Sezary
It's More than A Pollyana Complex; It's Overcome
http://michellereneewrites4christ.xanga.com/707886328/its-more-than-a-…
Living with a condition like a Neuromusuclar disorder along with the conditions that are not so difficult can be challenging
What do The Tough do when they get ANOTHER ICI diagnosis (or two*)?
http://theiciexperience.blogspot.com/2009/05/what-do-tough-do-when-the…
A play by play description of the reaction of a very experienced person with ICI to news of additional diagnoses.
Baffling Chronic Pain Linked To Weird Rewiring Of Brain
http://thematrix-dreammaker.blogspot.com
This was a study to see what the rewiring of patients brainwaves would have on the patients perception of real pain.
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National Invisible Chronic Illness Awareness Week
http://www.invisibleillnesswee…
To increase awareness of invisible illness; that nearly 1 in 2 people in the US have a chronic illness and about 96% of it is invisible.
National Invisible Chronic Illness Awareness Week is held annually in September and is a worldwide effort to bring together people who live with invisible chronic illness and those who love them. A virtual conference in held at www.invisibleillnessweek.com and the blog is updated a few times a day during August and September. Bloggers are welcome to participate anytime, but are encouraged to unite efforts during August and September to increase awareness online and share their experiences as well as encouragement. A badge is available that says you are blogging during the actual awareness week. Organizations are encouraged to educate the general public, churches, healthcare professionals and government officials about the impact of living with a chronic illness that is not visually apparent. INSTRUCTIONS: Get the Badge 1. Right click on the badge to download 2. Link it back to this web site at this link: http://invisibleillnessweek.com 3. Then write your blog posting. 4. Come back to this web site OR invisibleillnessweek.com and let us know about your blog in the comments section. Tell us about it! Share your title, topic/description and link. When to blog 1. You can blog at any time as we want people to know about this week during any time of the year. However, here are some tips. 2. Please post a blog on SEPTEMBER 14, 2009. We hope to have hundreds of blogs participate on this day! 3. Each day September 1 through Sept 20th we will be choosing a blog to feature on the Invisible Illness Week Blog. You will get loads of exposure, and we hope to also inform, educate, and encourage others. A few ideas to write about * Remember that not all of your posts have to have the "it's so not fair" tone. Write your "best advice" to others who feel invalidated. How have you learned to get past the remarks people have made? * Don't forget families and what they also cope with when one of their members has an illness. And how is it being invisible easier/more difficult for them? For example, if Dad's illness is invisible, does your son have to cope with his friends wondering why his Dad never participates in the father/son baseball game? * Remember caregivers. Any thanks, thoughts? * Remember all the aspects of living with invisible illness. Being a parent, a spouse, an adult child (who is maybe a caregiver too), a neighbor, etc. * Don't forget about all the kids who have illness too! * Cancer can be considered an invisible illness, as are things like eating disorders, mental illness and the list goes on. * Got others? Share them! IMPORTANT: We hope to blow those Google Alerts apart on Sept 14th with blogs all over the internet posting about invisible illness issues. Remember that with most blogging programs you can even write it in advance and have your post published on September 8th. Can you commit for us to blogging on September 14th on a topic about illness or invisible illness? We want to keep track, so please let us know by signing up here at Bloggers Unite.